Workshop on Disability Statistics

Report by Elena Dal Bo

Washington Group on Disability Statistics (WG) held a workshop aimed at Organizations of People with Disabilities (OPD), focused on understanding and improving the collection of data on disability in Latin America and the Caribbean. This workshop was held in Quito, Ecuador, on December 11 to 12, 2018.

I was invited as a representative of Inclusion International to this workshop.

The objective of the workshop was to create capacity among DPOs in the collection and use of disability data in their programs and in advocacy. The challenges faced and the lessons learned when using the questions from the Washington Group (WG) were reviewed and the application of the measurement tools of this Group were discussed. There was an opportunity to offer suggestions to improve data collection and analysis methods and to enhance the dissemination of evidence-based policies.

The WG professionals present were: Jennifer H. Madans, Associate Director for Science at the National Center for Health Statistics, USA and Chair of the Washington Group on Disability Statistics, Mitchell Loeb, researcher at the National Center for Health Statistics and the Washington Group and Daniel Mont Co-President of the Center for Inclusive Policy and member of the WG.

The topics addressed were:

  • The disability measurement and the WG on disability statistics
  • Brief review of the WG data collection tools
  • Issues to consider in data collection
  • Analysis of the damages and the importance of breaking them down by type of disability
  • Issues in the analysis of disability data

They stressed that the Washington Group is open to questions that are made by e-mail.

In addition to the WG presentations, the following presentations were made:

Juliana Souza de Queiroz, researcher, presented the 2010 Census Project, and mentioned that disability questions are included in the censuses of Brazil since 1990. She referred to the problems of translation of the WG questions and to other aspects that are under study for the next Census, including an accessible virtual spreadsheet so that people can answer the census by themselves. She also discussed the use of different cut points to define disability.

Sebastián Toledo, blind person who is part of the CONADI (National Council for the Attention of People with Disabilities) of Guatemala presented the ENDIS (NATIONAL DISABILITY SURVEY) conducted in his country in 2016 in conjunction with the National Institute of Statistics (INE), CBM and UNICEF.

Leandro Cippitelli, from Argentina, presented the National Study on the Profile of Persons with Disabilities carried out in Argentina in 2018, recently published.